We extend our congratulations to the newly appointed Prime Minister and the incoming government. This election marks a pivotal moment for our nation, presenting an opportunity to address crucial issues and implement meaningful change.
Regardless of individual views on the election outcome, we believe that by working together, we can achieve significant progress for bladder cancer patients and the wider community. We remain committed to engaging constructively with the new government and all parliamentary parties to ensure these priorities are addressed.
As a charity dedicated to supporting bladder cancer patients, we remain steadfast in advocating for policies that will enhance the lives of those affected by this disease.Our policy requests are clear and essential:
– Enquire about a national bladder cancer audit to reduce regional variations in care.
– Push for updated bladder cancer guidelines, which have not been revised since 2015.
– Advocate for self-referral pathways to expedite diagnosis.
– Standardise fast-track referral criteria across the UK.
– Optimise the NHS 111 referral pathway for early detection of bladder cancer.
– Ensure access to genomic testing for high-risk patients.
– Reintroduce and support the Tobacco & Vapes Bill in Parliament to ensure its passage.
Bladder cancer is not a rare disease, with nearly 20,000 people diagnosed annually in the UK. The statistics are alarming, with 16,547 cases in England, 1,691 in Scotland, 669 in Wales, and 230 in Northern Ireland. Bladder cancer affects all ages and sexes, with smoking being the biggest preventable cause. Common symptoms include blood in urine, frequent or urgent need to urinate, and recurring urinary tract infections.
Results from our UK patient survey revealed significant gaps in awareness and diagnosis. 58% of respondents were unaware that visible blood in urine is a sign of bladder cancer. Additionally, 64% were misdiagnosed with other conditions before receiving a bladder cancer diagnosis, and 63% reported significant delays in diagnosis, causing additional stress. In terms of treatment, 90% of patients did not receive information about clinical trials. Furthermore, 41% needed more information on treatment side effects.
Bladder cancer significantly impacts daily life. 44% of patients experienced financial hardship due to the disease, and 47% felt the long-term emotional effects of treatment were not fully addressed. We also recognise the pressing challenges posed by the current economic climate and the cost of living crisis. Many cancer patients and their families face financial strain due to rising costs of essential goods, services, and healthcare. It is crucial that the new government addresses these issues to ensure that all citizens, especially those battling serious illnesses like bladder cancer, receive the support they need.
We urge all political parties to set aside differences and work collaboratively towards these shared goals. Bladder cancer patients and their families rely on unified efforts to bring about the necessary advancements in research, treatment, and support, while also ensuring economic stability and affordability.